Conceptualising and constructing ‘diversity’ through experiences of public and patient involvement in health research

Abstract Background Increasing the accessibility of public and patient involvement (PPI) in health research for people from diverse backgrounds is important ensuring all voices are heard represented. Critiques PPI being dominated by ‘the usual suspects’ reflect concerns over barriers to faced minority groups or non-professional backgrounds. Yet, what has received less attention how undertaking work might produce experiences, potentially shaping motivation capacity different continue PPI. Methods We conducted qualitative explore experiences field UK understand these shape in-depth follow-up interviews with five contributors experience multiple projects, a focus group nine professional roles relating Interview data were analysed using narrative approach, then combined thematic analysis. Results The structure, organisation relationships ways that can intersect identities contributors, pose some. Navigating processes claiming expenses be frustrating particularly lower-income additional needs, short-term undermine trust between professionals. Pressure on coordinators find ‘more diverse’ also ongoing their inputs valued. Conclusions To increase diversity within PPI, ensure supported motivated changes needed wider infrastructure UK. More resources required support time professionals, unique circumstances each contributor accommodated across roles. Finally, critical reflection pressure seek needed, impacts this those already involved.